Comments for Venerata Noce di Cocco

Comment on PHPV: the eye, vision, and how I see by anastasia

anastasia — Thu, 18 Apr 2013 14:28:10 +0000

Hi Ashley, Thanks for your comment. Yeah, it’s strange in this world of so many to have something that you don’t know anyone else with, right? I’ve still yet to meet someone with PHPV. Yes, the eye is so malformed from the beginning that it really can’t be corrected, especially as it ages. Frankly, I am glad I was born before all of the surgeries they are doing now, which is probably traumatic for the infant and if the eye is removed, causes loss of vision. I know I value the peripheral vision I have in my PHPV eye. I suppose there are always cosmetic corrections that can be made, but I prefer doctors who are interested in keeping my eyes as healthy as possible. Thanks for being in touch!

Comment on PHPV: the eye, vision, and how I see by Ashley

Ashley — Wed, 17 Apr 2013 23:21:24 +0000

Thank you for sharing this story. I am findng comfort in knowing there are others out there that also have PHPV. I was born with it effeting my left eye. I am now 26 years old. I too was told this condition is very rare and born in the 80s they said not many doctors would see that in their time practicing. The more research I do, as an adult, to become more informed, the more I am finding that others have it as well. I am curious what your doctors say can be done as you age? They say to me, not much can be done, but only continue to have surgeries to correct the laziness. Is this the same things you hear? Thanks for sharing.

Comment on long shadows by anastasia

anastasia — Fri, 15 Feb 2013 02:17:27 +0000

Thank you, Rosie. Moments after it I followed your doppelganger for an avenue. She had an awesome coat on. Miss you. xo

Comment on long shadows by Rosie

Rosie — Thu, 14 Feb 2013 13:48:25 +0000

I. the second one especially! So dramatic :)

Comment on the love child by Anastasia

Anastasia — Mon, 24 Dec 2012 16:03:57 +0000

No, e. Good grief. How do you even know that word?
You know what they say, always a godmother,
never a god.

(f. lebowitz)

Comment on the love child by ETA

ETA — Mon, 24 Dec 2012 01:50:13 +0000

You preggers, Anyuta?

Comment on bad decisions and yoga studios by Luke

Luke — Thu, 22 Nov 2012 17:53:04 +0000

I found this after reading your reviews on classes there. Interesting. I'm glad the program lived!

Comment on PHPV: the eye, vision, and how I see by Anastasia

Anastasia — Sun, 18 Nov 2012 13:43:21 +0000

Hi Samantha, Sorry for the late reply, I was out of town. I assume you’ve always had it and were just diagnosed now? Makes sense, as it wasn’t really defined, I think, until the early-mid 70s. Has anything changed since diagnosis? Best, A

Comment on PHPV: the eye, vision, and how I see by Samantha

Samantha — Wed, 07 Nov 2012 00:32:03 +0000

Hello, today at age 45, I was diagnosed as having PHPV in my right eye. Go figure!

Comment on townies of brighton beach by Anastasia

Anastasia — Sun, 07 Oct 2012 19:21:24 +0000

OOOH! You could get kicked out of France for receiving a cheese bread good from abroad! In Paris?! You are so lucky they can’t read english there. You’d be deported already.