So, I went on a bit in the last two posts. I want to hit a few points that might have been lost in the story. One, I’ve noticed that most of the people in online forums talking about PHPV are parents of young children who are horrified by this condition. Of course, we all want our kids to be healthy. There aren’t that many people who actually have the disease chatting about it, and that’s because we are used to it. It really isn’t that big a deal. I see that docs are doing surgery on babies’ eyes now, and the only advice I can give a parent is to be really, really sure that it’s necessary, because often I don’t think it does any good, and honestly, other than some fear around having only one good eye, and having to wear glasses (which I don’t even think about, really), the worst part of the condition as a child was all of the doctor visits (before Woody, of course). My eyes are extremely sensitive to light, and having light blasted into them is very, very unpleasant. (This is why my prescription shades are on even in winter.) Not to mention the doctor talking to the parents in a grave, hushed tone. Scary.
As for my last last few check-ups, Dr. Amilia Schrier (I’ve seen it spelled Amelia, too) explained that if I saw bright or flashing lights, or worse, a very obvious darkness, as if a veil of gray has been pulled over my eyes, I should get to her immediately because the retina is starting to detach. So, if that should happen to you, make haste.
My other great doctor experience was with an orthopaedic guy I found over a year ago, believe it or not. (According to my doc friends, orthopaedic surgeons are the most egotistical and jock-like of all MDs). Dr. Dermksian, however, listens, is patient, explains everything without condescending, has never offered or prescribed me drugs (always a plus in my book), and is the most prompt doctor I’ve ever seen. And he takes my insurance. I’ve seen him on different occasions for a foot condition (sesamoiditis) and patellar tendonitis. When I asked him about wearing a knee brace, he told me it’s probably more helpful psychologically than anything. I appreciate that. Why my inflammation occurs in the tendons holding my sesamoid bones (the patella is a sesamoid bone, as well as the sesamoids in the feet), we’ve no idea.
Yes, sesamoid does come from sesame seed.
There’s also an amazing dermatologist in that building (1090 Amsterdam), Dr. Robin Buchholz M.D. I saw her years ago because of a weird spot on my leg I feared was skin cancer (it wasn’t). She was recommended by a friend, for good reason. She’s just lovely.
So there. The good stuff. None of the horror stories so easy to come by. Some doctors out there do care about our health, though the system does make that difficult for them.